@jeanne-mayell While frustrating - Kevin is still in the ICU.  Part of his recovery is finding and striking the right balance of meds and making sure his body is repaired.  When he goes off oxygen his O2 tanks so he’s still there for now while they determine the cause.  But - this is normal - while it’s taking longer for Kevin than it does for most it’s a lot of trial and error, wait and see.
In the meantime: he’s eating a liquid diet - not being fed through tubes anymore and me may start solids soon.  This is improvement.
his PT is getting him up to walk several times a day.  He’s been flat on his back for a week solid so this has to feel good.  This is improvement.
some color is returning to him - not the tan brown yellow of liver decay.  Something closer to “tropical vacation.”  This is improvement.
his body does not seem to be rejecting my liver on his current cocktail.  This is improvement.  There is still some clotting but it appears to be slowing dramatically and they’re still able to control it with blood thinners.
All good news!
my glow for today - I came downstairs to eat at the table for lunch and dinner.  Lunch wore me out and I took a four hour nap after but then I got up and took a shower and came down and had all the fruit I could fit on a plate for dinner.  After months of questionable keto food it felt good to be eating something I haven’t had any of in a good long while :-)
my pain still remains connected to gas and if I get up and move around or even sit on the toilet it clears and I can get back to my current acting job of: Â Victorian woman suffering from wasting disease. Â All good things.
Kevin will be out of the ICU soon. Â I know it.
@dannyboy-yes, good news! Kevin will be out of the ICU in no time. It can take time to get the best mix of meds (& there will probably be changes in the future as well). His color returning is good, and eventually he'll look rested & healthy. That will be wonderful for all of you to witness. Â
Victorian woman suffering from wasting disease, maybe with a side of the vapors?🤢
@dannyboy thank you for the encouraging updates. I’m glad you are on the mend and to hear that Kevin is making progress.  I’ll keep the prayers and healing light coming your way.  It really is amazing.  I love that your wonderful sense of humor shines through.  Wonderful news all around. Again we are reminded of the blessings we receive and witness.  Thank you.  Be well.
@dannyboy Thank you for the updates! Glad that things are continuing to move in the right direction for both you and Kevin (albeit a bit more slowly.) Continuing to send good energy and light for healing for you both and that things balance out for Kevin soon and he can take that next step down out of ICU.
UPDATE: Â Kevin texted me a picture that it took a good second for me to recognize. Â It was of the in room whiteboard from a room kitty corner from where I spent my in hospital recovery. Â He is out of the ICU and may get some solid food soon. Â This is such good news and has really made my day!
Oh this is excellent news and one that must have made your day! Â
Thanks for all of your updates! Â So happy for you both!Â
@dannyboy This is excellent news. It means his oxygenation is stable, which is a great relief. Thank you for sharing this. Kevin needs our prayers for the graft to continue to stabilize and flush away all of the toxins that had built up. He's on his way to a new life!