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(@ana)
Illustrious Member
Joined: 6 years ago
Posts: 991
 

@luminous  I wish you healing, strength, and peace of mind.  ❤️



   
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(@lovendures)
Illustrious Member
Joined: 7 years ago
Posts: 4091
 

@luminous

Thank you for blessing our community with your thoughtful and kind posts over these many years.  Our family is so blessed for the gift of you. We love you. 

May you be surrounded by light, love, angels and Spirit all the time.  May you feel God's presence and know you are not alone.  May deep peace fill your body and soothe your soul.  May your doctors and health care team be guided to help you on the best path forward and may your body respond positively.  May you always feel loved and cared for. 

Your message to us is a beautiful and loving gift.  May our love for you help you through this time and may you feel many blessings. 

 

 



   
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(@law5960)
Trusted Member
Joined: 2 years ago
Posts: 9
 

@luminous I am sending healing energy and will include you in my prayers,  I wish you the best.



   
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(@raincloud)
Famed Member
Joined: 5 years ago
Posts: 321
 

@luminous 

I lack adequate language to express my reaction to your post. I have wondered about your medical situation since your last post on it wishing that I had a magic wand to fix it all. Thank you for letting us know what you are facing so we can send you supportive energy. You have a lovely spirit that I believe has touched many in ways you have not imagined; @deetoo was eloquent in a way that eludes me but I can and will send love, peace, and healing to you from the depths of my soul. 



   
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(@ghandigirl)
Illustrious Member
Joined: 8 years ago
Posts: 1064
 

@luminous

So much love and light sent. Hope you receive and feel it.

Much love,

ghandigirl



   
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(@journeywithme2)
Illustrious Member
Joined: 6 years ago
Posts: 1818
 

@luminous I am praying asking for your Highest Good in all areas of your life be made manifest 🙏🏻💚🕊️💚🙏🏻 that Creator bless all hands that touch you to be Healing, Loving Hands and your Drs and caretakers give you all the comforting and care you need. That you be made to know how much you are loved and how valiantly you have endured and battled this earthly vehicle's deficits. That you are fully informed of all options and best solutions for your unique individual needs. I give thanks for answered prayers.



   
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(@lowtide)
Illustrious Member
Joined: 5 years ago
Posts: 633
 

@luminous

Big hugs and love ❤️❤️  You are not alone. We are all here for you.



   
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 pafc
(@pat-czap)
Noble Member
Joined: 5 years ago
Posts: 155
 

@luminous You are going through so much, I can't even imagine. I do hope you can get some good news for your medical treatment. Sending you light and love.❤❤❤



   
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(@luminous)
Famed Member
Joined: 5 years ago
Posts: 398
 

Hi all,

Thank you for your support and wonderful prayers and lovely words.

I want to share both an update and an experience I had the other day.

The other night, a woman came and sat next to me when I was in my hospital bed half awake. They spiritually hugged me, and told me via telepathy they would swap bodies with me if they could and take this all away. I don't know who they were, but I think they were a spirit/angel or someone maybe sending out a prayer to me from here? Either way, it was a very deeply soul touching experience.

On the health side, I've now had a chest ct venogram which reveals subclavian vein stenosis on the right and left brachiocephalic vein stenosis. But the report said both veins should be still be patent for central venous lines.

Given the problems I have had with line insertions failing recently, and the constant trauma to me, I have decided to talk to my doctors about other types of treatment such as prokinetics I have not tried before to help my gut motility and elemental feeds (which are essentially pre-digested nutrition) that I have not tried before. 

Whether my ideas will work, remains to be seen. But while I'm here in hospital, I felt it was a good opportunity to try some new things. Both my doctors and nutrition nurses support these ideas.

Having a new central line is not off the table, but after all my venous problems, I'm willing to explore alternatives in case they get further stenosed.

The other issue I have is that even after my old lines were removed, I'm still having pressure symptoms in my upper chest. I hoped this would have gone away, but it still persists, and I've been told the stenosis shown in the ct venogram would not explain the symptoms I'm experiencing. It's possible the veins need a rest and to recover and the symptoms will subside, but my nutrition nurse said she wanted a radiologist to run contrast directly through the vein to see what was happening from a new line insertion

So right now, I'm trying to figure out if I have made the wrong decision in not going straight for a new line and running contrast through it to see what else might be happening. But given all the history and trauma of my lines and veins, I felt it was best to try some other things first.

Am I making the wrong decision? It's so hard to know these things when you are so close to them emotionally.

Regards,

Luminous 

 

 

 



   
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 anya
(@anya)
Noble Member
Joined: 6 years ago
Posts: 189
 

If anyone has a moment, could you send out healing energy to southern california as a whole?  The stress of what is coming coupled with the disaster and displacement is challenging us all and we are feeling burnt out and overworked, pun intended.  There were serious problems here before it all and we need calm and strength.

Thank you.



   
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 anya
(@anya)
Noble Member
Joined: 6 years ago
Posts: 189
 

@luminous i don't have answers for you. I do wish you the best luck and quick healing.  I hope someone else on here can assist you more right now.  I hope all with any chronic health issues get a full karmic write off for any health and mental health stuff during these times.



   
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(@bluebelle)
Estimable Member
Joined: 1 year ago
Posts: 25
 

@luminous I just sent you healing.  My entire inner vision filled with the color red, very intense.  When I read your post, the first thought that came to me was “don’t second guess yourself.  You have intuition and you’re being guided.”  Peace be with you, Luminous.



   
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(@jeanne-mayell)
Illustrious Member
Joined: 9 years ago
Posts: 7096
Topic starter  

@anya We are thinking of Southern California all the time, 24/7.  We did some focused healing work in Circle of Light Wednesday night with some powerful healers attending. We continue to send love and peace to all Angelinos.  May the traumas they are suffering be turned into new meaning for their lives. 

LA is a great place of light on this earth. It will rise again and be a treasure on this earth and for the world.    

Healing and calm for all who are affected. 



   
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(@deetoo)
Illustrious Member
Joined: 7 years ago
Posts: 2016
 

@luminous, I agree with @bluebelle -- don't second guess yourself.  You are being divinely guided in your journey. 

Thank you for sharing your light with us.  Spirit is with you, and so are we.  May you continue to feel our love, support and prayers as you move forward.



   
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(@lovendures)
Illustrious Member
Joined: 7 years ago
Posts: 4091
 

Dear Luminous,

You are such a beautiful light in our community.  Your name fits you perfectly. 

I will always remember the light you shined for Coyote when he was so ill in the hospital.  Your words impacted me as I read them those 3 years ago and so I searched for them again tonight..  

You mentioned  your favorite quote which was from Superman, spoken  by Marlin Brando and altered it with Coyote's name.  I would like to share that same quote for you,  altered once again for it is quite fitting:

"They can be a great people, @Luminous; they wish to be. They only lack the light to show the way. For this reason above all, their capacity for good, I  have sent them you... "

You were sent to this word to also be a light, just in your own beautiful way.  

I believe Coyote has been with you,  as you were there for him, just in a different way.  I believe he understands all that you have been through these many years, better than any of us can. He is not the only one who has been with you either.  So many beings of light are around you and love you.We are also with you.

Have hope Luminous.  Active hope. 

We will all continue to send you light, healing, love and ask for you to receive guidance.  

I hope you don't mind if I share another part of a post you once wrote.  It is so fitting for this exact time we are living and I am truly taking it to heart tonight.  I believe you will have more opportunities to impact lives with that beautiful light of yours.  I have active hope .

You said:

One of the big things that has changed me is my perspective on life. That means I now see people who I usually profoundly disagree with, as someone who could be my brother or my sister or my cousin or father or mother. I don't see them as enemies like I did before. I see their flaws, but I have flaws. We are all flawed. So I try now to sympathise with them more and better understand from their perspective, but educating myself on what their perspective is. Ignorance can work both ways. The Earth is being tranformed,  denitely yes, we can all feel that, but we can't co-exist and transmute our differences if both sides box people off and leave them closed off or a lost cause. Sometimes we need to reach out and just be a good neighbour or friend to them so we can spread the light. It is about touching lives with our light. It is what we all have to do.

You are a blessing. Your light is so strong.

May you feel the love and light you have given to others.  May you feel many blessings. 



   
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 anya
(@anya)
Noble Member
Joined: 6 years ago
Posts: 189
 

@jeanne-mayell and everyone.  Thank you.  Being nearby, the uneasy energy is palpable and difficult for many of us.  I do see that the outpouring of generosity locally is leaving me more hopeful.



   
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(@jeanne-mayell)
Illustrious Member
Joined: 9 years ago
Posts: 7096
Topic starter  

@ana  Good luck. Visualizing success.



   
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(@luminous)
Famed Member
Joined: 5 years ago
Posts: 398
 

Wow, I don't know what to say. I think I may have something in my eye.

I am so deeply touched by all this. 

You are all truly amazing.

 

 

 



   
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(@luminous)
Famed Member
Joined: 5 years ago
Posts: 398
 

Hi all

Thanks for you for sending me lots of healing.

You have given me strength and courage to consider some fresh ideas about my situation.

Currently, the prokinetic drug is not working, and is unlikely to work in the timeframe I need to replace my IV nutrition with oral nutrition.

Meanwhile, more pressing matters are my continued lack of adequate nutrition and venous stenosis symptoms.

I've decided to seek a further opinion on my venous stenosis and venous access with a private consultation with a vascular specialist. They work at the same hospital I'm at but you can pay to see them as a private consultation. I need to talk to a vascular specialist, and so far it has constantly been nutrition nurses talking to them on my behalf. I need to speak to them face-to-face, and this might be the quickest way for me to do that.

There is more than meets the eye I feel with what my venogram shows because the symptoms are still happening despite the line having been removed. I may need something like a venoplasty, but it needs to be discussed properly and not all decided at the last minute after they go in and can't insert another central line.

Regards,

Luminous 



   
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(@lowtide)
Illustrious Member
Joined: 5 years ago
Posts: 633
 

@luminous I think that's a good plan. The vascular  consult is right on target. One step at a time. Sending you love and support. ❤️



   
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