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[Sticky] Request or give emotional support

(@ana)
Illustrious Member
Joined: 6 years ago
Posts: 1021
 

@luminous  I wish you healing, strength, and peace of mind.  ❤️



   
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(@lovendures)
Illustrious Member
Joined: 8 years ago
Posts: 4117
 

@luminous

Thank you for blessing our community with your thoughtful and kind posts over these many years.  Our family is so blessed for the gift of you. We love you. 

May you be surrounded by light, love, angels and Spirit all the time.  May you feel God's presence and know you are not alone.  May deep peace fill your body and soothe your soul.  May your doctors and health care team be guided to help you on the best path forward and may your body respond positively.  May you always feel loved and cared for. 

Your message to us is a beautiful and loving gift.  May our love for you help you through this time and may you feel many blessings. 

 

 



   
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(@law5960)
Trusted Member
Joined: 3 years ago
Posts: 10
 

@luminous I am sending healing energy and will include you in my prayers,  I wish you the best.



   
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(@raincloud)
Noble Member
Joined: 5 years ago
Posts: 332
 

@luminous 

I lack adequate language to express my reaction to your post. I have wondered about your medical situation since your last post on it wishing that I had a magic wand to fix it all. Thank you for letting us know what you are facing so we can send you supportive energy. You have a lovely spirit that I believe has touched many in ways you have not imagined; @deetoo was eloquent in a way that eludes me but I can and will send love, peace, and healing to you from the depths of my soul. 



   
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(@ghandigirl)
Illustrious Member
Joined: 8 years ago
Posts: 1093
 

@luminous

So much love and light sent. Hope you receive and feel it.

Much love,

ghandigirl



   
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(@journeywithme2)
Illustrious Member
Joined: 6 years ago
Posts: 1911
 

@luminous I am praying asking for your Highest Good in all areas of your life be made manifest 🙏🏻💚🕊️💚🙏🏻 that Creator bless all hands that touch you to be Healing, Loving Hands and your Drs and caretakers give you all the comforting and care you need. That you be made to know how much you are loved and how valiantly you have endured and battled this earthly vehicle's deficits. That you are fully informed of all options and best solutions for your unique individual needs. I give thanks for answered prayers.



   
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(@lowtide)
Illustrious Member
Joined: 6 years ago
Posts: 660
 

@luminous

Big hugs and love ❤️❤️  You are not alone. We are all here for you.



   
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 pafc
(@pat-czap)
Noble Member
Joined: 5 years ago
Posts: 165
 

@luminous You are going through so much, I can't even imagine. I do hope you can get some good news for your medical treatment. Sending you light and love.❤❤❤



   
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(@luminous)
Famed Member
Joined: 6 years ago
Posts: 398
 

Hi all,

Thank you for your support and wonderful prayers and lovely words.

I want to share both an update and an experience I had the other day.

The other night, a woman came and sat next to me when I was in my hospital bed half awake. They spiritually hugged me, and told me via telepathy they would swap bodies with me if they could and take this all away. I don't know who they were, but I think they were a spirit/angel or someone maybe sending out a prayer to me from here? Either way, it was a very deeply soul touching experience.

On the health side, I've now had a chest ct venogram which reveals subclavian vein stenosis on the right and left brachiocephalic vein stenosis. But the report said both veins should be still be patent for central venous lines.

Given the problems I have had with line insertions failing recently, and the constant trauma to me, I have decided to talk to my doctors about other types of treatment such as prokinetics I have not tried before to help my gut motility and elemental feeds (which are essentially pre-digested nutrition) that I have not tried before. 

Whether my ideas will work, remains to be seen. But while I'm here in hospital, I felt it was a good opportunity to try some new things. Both my doctors and nutrition nurses support these ideas.

Having a new central line is not off the table, but after all my venous problems, I'm willing to explore alternatives in case they get further stenosed.

The other issue I have is that even after my old lines were removed, I'm still having pressure symptoms in my upper chest. I hoped this would have gone away, but it still persists, and I've been told the stenosis shown in the ct venogram would not explain the symptoms I'm experiencing. It's possible the veins need a rest and to recover and the symptoms will subside, but my nutrition nurse said she wanted a radiologist to run contrast directly through the vein to see what was happening from a new line insertion

So right now, I'm trying to figure out if I have made the wrong decision in not going straight for a new line and running contrast through it to see what else might be happening. But given all the history and trauma of my lines and veins, I felt it was best to try some other things first.

Am I making the wrong decision? It's so hard to know these things when you are so close to them emotionally.

Regards,

Luminous 

 

 

 



   
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 anya
(@anya)
Noble Member
Joined: 7 years ago
Posts: 228
 

If anyone has a moment, could you send out healing energy to southern california as a whole?  The stress of what is coming coupled with the disaster and displacement is challenging us all and we are feeling burnt out and overworked, pun intended.  There were serious problems here before it all and we need calm and strength.

Thank you.



   
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