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[Sticky] Request or give emotional support

(@tonyaw)
Reputable Member
Joined: 6 years ago
Posts: 44
 

@ana if you would like to email me, let me know how I can help. I am a mental health provider. I can ask Jeanne to give you my info. 
warmly, 

Tonya 



   
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(@ana)
Illustrious Member
Joined: 6 years ago
Posts: 1021
 

@raincloud @jeanne-mayell @tonyaw

Thank you for your support and concern.  I know D needs to see a psychiatrist.  My therapist made that pretty clear on Friday.  But it's easier said than done.

First of all, D does not want to see a doctor at all. 

  Second, he had a routine checkup appointment with his primary doctor scheduled for this morning.  I was hoping to go with him and ask the Dr for a mental health referral,  but then learned that D cancelled it a couple weeks ago.  He said it was because his insurance wasn't working and he had not been able to get it straightened out.  I couldn't get a straight answer as to what was wrong with it. We all know that US insurance is a maze with bear traps in every corner but I think I could solve it for him if I had all the info I needed.   The medical practice suggested I call a mental health practice-- I did and they  seem like they would fit his needs but I can't get an appointment without insurance info.  

I would be grateful if I could get spiritual (or other) help in breaking through these barriers and getting him to a good and thoughtful psychiatrist who won't just toss him some random pills and hope for the best.   And it needs to be soon-- both for his sake and mine.

You are all wonderful people.  Thank you.



   
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(@luminous)
Famed Member
Joined: 6 years ago
Posts: 398
 

Hi all,

I am in hospital again at the moment

I've been dealing with a lot of health issues that have got worse.

In particular, I'm reliant on IV nutrition via central venous lines over the past 12 years due to a combination of severe gastrointestinal motility issues and neurological issues.

Over time, my central venous access has become increasingly problematic, as I've had to have various central lines replaced due to venous stenosis.

There is concern right now that I will lose central venous line access altogether. I went in for a line replacement yesterday and they could not get access. It's possible now that the venous stenosis in my chest has now spread and is now more severe.

There is no easy way to treat venous stenosis. Unlike arteries which are usually more patent for stenting, veins tend to suffer with issues of thrombosis and rupture. Furthermore, stents once thrombosed are difficult if impossible to replace, and there is also the possibility of the stent migrating down the chest vein towards the heart.

I have been trying desperately to avoid this outcome for many years, but I have felt many times like this is a losing battle.

Right now, I have IV fluids via cannula in my hand, but that is all I can have.

I was so close to making a breakthrough in London regarding my neurological issues, as I was just given the opportunity to have a new type of myelogram to look at my spine for csf-venous fistulas. But it seems the other parts of my health haven't held up long enough for me to get there.

I don't know what the road ahead will lead to, I know of only two outcomes and one is good and one is bad.

I'm not going to lie and tell you I'm not scared, because I am.

But if I don't ever get the chance to say this again, I do want you all to know that I am grateful for you as a community and the light you all shine in the world.

Keep up the good work, and if you can say a little prayer for me, that would be great

All the best,

Luminous

 



   
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 lynn
(@lynn)
Illustrious Member
Joined: 8 years ago
Posts: 684
 

@luminous  I am so grateful to you, and your clear, kind and prescient voice in this forum. Thank you for offering your wise words for us to benefit from. I will pray for your recovery and well-being, and you will be in my thoughts and heart.



   
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 CC21
(@cc21)
Illustrious Member
Joined: 8 years ago
Posts: 687
 

@luminous I am also so grateful to you and glad that you are a part of our community. Sending lots of light to you for healing and clarity for a solution for your health issues (all of them, but especially the venous stenosis.) I will also be keeping you in my thoughts and praying for your well-being.



   
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 Baba
(@baba)
Illustrious Member
Joined: 8 years ago
Posts: 655
 

@luminous I’m so sorry to hear of your health challenges and I am sending you light and healing and will include you in my prayers. 



   
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 anya
(@anya)
Noble Member
Joined: 7 years ago
Posts: 228
 

@luminous

 

I send healing energy with intent that your health issues are completely healed.



   
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(@tybin)
Noble Member
Joined: 6 years ago
Posts: 155
 

@luminous

 

Love and Light to ya. I hope they figure out what can help



   
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(@deetoo)
Illustrious Member
Joined: 7 years ago
Posts: 2035
 

Thank you for reaching out to us, @luminous.  You are a precious gift to our community.  I always welcome reading your posts and feel comforted by your gentle, wise and loving presence.   

I’m sorry you’re facing this complex medical issue.  I wish I could be there with you now, to give you a big hug, to sit by your side and hold your hand.  That’s a lot on your plate, and I know you’ve been dealing with these difficult health challenges for some time.   

I’ve just lit a healing candle for you, @luminous.  May angels watch over you and may your doctors be divinely guided as they move forward with your treatment. 

I'm sending you all of the love, strength, and healing that your heart can hold.   Just know that we are family, and we are here for you. 



   
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(@ana)
Illustrious Member
Joined: 6 years ago
Posts: 1021
 

Just a little update about my BF -- he's calmed down over the last couple days.  I got his insurance issues straightened out.  Now I need to convince him to make an appointment with a doctor.  Wish me luck with that.  



   
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