@ghandigirl I hope you feel better each day. Keeping you close in light and love.
I haven't been posting much lately, as I've had lots on my plate. I have been stopping by, reading and sending light, love and prayers to those in need. Will continue to do so.
I have my youngest & their girlfriend coming for Christmas (yippee!), but I still have no real holiday spirit. Not a single decoration has made it out of storage, and that may hold true for the remainder of the season. Oh well.
On a good note, the day before Thanksgiving, my father was officially graduated from hospice. This is a rare phenomenon (occurring in only less than 7% of cases). I'm not holding my breath about his tenure here, but I am glad that he's happy that he graduated.
@cindy That's wonderful news about your father. And I think we all have holiday burn-out already. My mantra for December is, "Don't worry, be happy."
@cindy Great news about your father! My mom was taken off hospice, too. I was ever so grateful for their care. An extra set of eyes was so important when her health was declining. And you can always admit him again if needed. Hospice is an example of angels among us. ❤️
@cindy I have never heard of someone coming off hospice, although my knowledge of hospice is limited to my mother in law. Hoping your dad continues on the "happy" note.
So, bad news I'm sorry to report.
It's been a week since my targeted blood patch for my CSF leak and I am about 90 percent sure it has failed.
There has zero improvements to pressure related symtpoms. I've been lying flat everyday doing the bare minimum and not one thing has changed.
This will now be my fourth failed blood patch. The last one was different because it was targeted and the others were non-targeted, but it has been the same zero improvement.
I feel devastated about this because I worked so hard to get the exact spot of the CSF leak found (I waited years and years), and when it is finally found, this fails anyway.
My thinking now is to try and understand now why it failed. I have deep suspicion it may be a CSF-venous fistula instead and this is why it failed to respond to any blood patching, and that will require a different treatment altgoether. Usually it is either surgery or a new catherisation technique where they can go into the vein and block the fistula (which would be my preference).
Right now, I'm just trying to get into a positive mood for Christmas and another new adventure that awaits in the New Year. The answers are coming, albeit slowly.
@luminous Sorry to hear you feel your blood patch has failed. I hope you find a permanent solution to this ongoing health issue.
@luminous I'm so sorry the treatment didn't work. I'm sure the disappointment is overwhelming. I pray that you and your medical team will not stop until you find the answer. Take care of yourself. Keep the faith.
Thanks @pafc and @lowtide for your kind words.
I'm going to try and visit one of the Cathedrals where I live hopefully next week and say some prayers there and light a candle.
Ask your son and significant other to help you decorate a bit. They may help bring some of the holiday spirit into your home. My daughter and her enthusiasm sure has helped our home this year.
Is there a tradition he is looking froward to? Perhaps focus on that (those) together. He may be in need of some of those comforting traditions this year after all that happened with his father and that side of his family. It may comfort you also.
I'm so sorry you are going through this. I like the idea of lighting a candle at the Cathedral. When I light the Menorah I will say the prayer for healing for you.
@lowtide I know it is so disheartening to find they are unable to correctly diagnose and treat your health issues... have gone through that too. I keep you in my prayers that the answers and treatment you need will be forthcoming sooner rather than later. Sending yiou much Light and Love and Healing Energy.
@lowtide I know it is so disheartening to find they are unable to correctly diagnose and treat your health issues... have gone through that too. I keep you in my prayers that the answers and treatment you need will be forthcoming sooner rather than later. Sending yiou much Light and Love and Healing Energy.
@luminous this was meant for you, love.
@lowtide I know it is so disheartening to find they are unable to correctly diagnose and treat your health issues... have gone through that too. I keep you in my prayers that the answers and treatment you need will be forthcoming sooner rather than later. Sending yiou much Light and Love and Healing Energy.
Thanks @journeywithme2 @lowtide :)
So, be aware that I am not a known psychic but I felt a "ping" when I read CSF-venous fistula so my hunch agrees with your hunch. I also strongly feel that you have intuitive knowledge of your body. As a terrible pun I would urge you to keep "plugging.."